Antibiotics, holistic, rife, ozone, bee venom, paleo, stem cells,B12 IVs, saunas, tastings, the list goes on. What type of of antibiotics, do you combine them, do you pulse them, should you IV them, should you only do herbals? What about Holistic? What about Reiki? Should I go to Germany or Mexico for my treatments? What about….every.single.thing.I.find.on.the.forums.
Lyme disease diagnoses tends to follow a type of equation- the first part is trying to obtain a diagnosis. We tell ourselves unknowingly that once we have our answer as to what is making us so sick, it’ll be much easier. That is usually true in some cases- once we can put a name & face to our enemy, we can begin to develop a plan of attack. But what if our enemy is constantly moving and shape shifting? So, we obtain our diagnosis and then the reality sets in that even though we have a name and a face for our disease, the protocol isn’t as easy as we may have hoped it would be. So, then we go onto the forums and begin to do our own research, which we must do, because to fight off our enemy, we must learn all of its weaknesses. And this is where it appears virtually every Lyme patient begins the process of becoming extremely overwhelmed.
I personally have experienced it, as I am sure you have too if you are reading this either as a person with Lyme, or someone who has a loved with Lyme. There is a legitimate reason it’s called “falling down the rabbit hole.” Just when you think you’ve read through the majority of possible treatments, ten more pop up. So what is someone to do?
I am not a doctor, so I cannot advise you one way or another in regards to treatment protocols. However, as a mental health provider, I can advise to tune into your own self and take a look at your own stress levels. Yes, it’s paramount to be your own advocate, yes it is important to become literate when dealing with any disease as tricky and elusive as Lyme Disease. However, it is easy to lose yourself, your sanity and sense of control when you spend hours reading up on hundreds of different treatment protocols.
Many of these seem very promising, as do the promises that come along with them- we may hear that someone got better within months or even weeks, so it is only natural that we would be willing to try anything in the name of having our health back.
I encourage anyone when feeling overwhelmed and lost to think about taking a step back from over thinking, over-researching and overanalyzing (easier said than done, I know). The main difficulty with Lyme is it doesn’t tend to adhere to any timeline other than it’s own, it will get better in it’s own time, not when we want it to. If you have a good doctor, I would encourage you to put your confidence in your doctor’s abilities and put energy into self-care and centering this energy around thanking your body for the fighting it does day in and day out to keep itself alive. There is no magical pill or phrase that will make the frustration of this disease go away, however there are small steps we can take to help ourselves regain some sense of relief in our lives.
Alexis is an advocate for mental health wellness in the Lyme Disease community